Marlee got discharged this afternoon after her last Rituximab treatment. And, as soon as she got home she was full of smiles! The last week she was really starting to hate her hospital room. She would constantly get fussy and would be better when they were walking around pediatrics or at the play area. So, what a relief (for everyone) that she was able to come home today!!!
The fight against this "Monster" is still far from being over. Marlee came home with her NG Tube, so her primary source of feeding will still be through this tube. She is still not talking yet. And, is not able to walk yet, although she is standing for a bit.
A home health nurse will be checking in on them. And, Marlee has her next scheduled IVIG treatment next week along with PT and OT appointments.
But, coming home is a HUGE blessing. Tonight, I FaceTimed them and they all looked so happy and relieved. The smiles were priceless!
Thank you to everyone for all the generosity, care, and love that you have shown for Marlee. It definitely has been an up and down journey thus far. Keep praying for her and the family as they still will have much to contend with in the future. And, please continue to share her story, blog, and donation/help website. Any little bit will go a long way to help my niece!! Blessed and so very grateful for all of your support!!
Monster in Marlee Donation / Help Website
“There is a light in this world, a healing spirit more powerful than any darkness we may encounter. We sometimes lose sight of this force when there is suffering, too much pain. Then suddenly, the spirit will emerge through the lives of ordinary people who hear a call and answer in extraordinary ways.”
--Mother Teresa
Marlee and her Mommy enjoying the sunshine in the Pediatric Play Area one last time before going home!
Marlee and one of her nurses that took care of her at Kaiser
Marlee at home with her Sister! Jayden is so happy!!
Mommy and Marlee so happy to be home!
Just some of the supplies that they need to care for Marlee at home. But, they will probably go through it so fast!
FaceTime with Aunty Can to tell me she made it home safe and is so excited to be out of the hospital!
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