Tuesday (04/02/13) - late post

Marlee had a great PT session.  PT got her up to a standing position.  Although, she still isn't strong enough to stand or walk yet, it was a good step in building up her strength.

Respiratory treatments were started on Marlee in hopes to help with her persistent cough.  She is getting the ThAIRapy vest (Chest physiotherapy) to help loosen any secretions in her lungs.  Although her chest x-ray came back as clear and normal, she's had a persistent coarse, wet sounding cough.

We had a tough evening... They had been trying to increase her NG tube feedings and calorie intake.  But yesterday she a lot of trouble tolerating her feedings.  She vomited 4 times in less than 2 hours and it continued until the night.  Her tube feedings were held and they increased her IV fluids.

Marlee had us visiting her the entire day.  Her cousins, Auriyana & Dylan wanted to spend their Spring Break with Marlee and her sisters.  Actually, I think they all LOVE the JW House!! It makes them feel like they're in a hotel on vacation, I think!

Here are pictures from yesterday (04/02/13):

Enjoying some sunshine with Daddy at the Pediatric Play Area

Cousins (Auriyana & Dylan) Came to spend the day with Marlee

Physical Therapy Session

Trying to get Marlee to stand and take a few steps to Daddy

 

 

Marlee's First Respiratory Treatment (ThAIRapy Vest, aka Marlee's Harlem Shake!)

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Getting her blood drawn

 

 

Watching TV with Sister Jayden